Vantaggi
Rare disease registries are a great mission. Improving health care for people with conditions that need more access is an admirable goal.
Svantaggi
The CEO cannot regulate her own emotions. She berates people publicly in meetings, or via email with a large distribution, whether or not they actually did anything of note. I have never seen this anger in a situation that justified it. She micromanages the entire company, whether she is knowledgeable in the area or not. None of the employees are allowed to send email to customers without running them by her first. The employee's rank does not matter. This approval can take multiple days when the CEO is in transit or busy - which is all the time since she does not trust the people she hired. Her inner circle are all yes-men. They will not speak up to or against her, no matter how misguided or counterproductive she is. In fact, they delight in telling tales and encouraging her mistreatment of colleagues. They are afraid of her wrath, with good reason. Feeding her misinformation is the way they stay in her good graces. If she were not funding the company herself, there's no way this company would exist. She will never collaborate effectively with an investor. She would not listen to advice or take action on any of their recommendations. She is unethical with employees and customers alike. That is why there is neither an HR department nor anyone in charge of security or compliance. Ditto to all the other reviews on this site -- avoid this company at all costs.